Resources & Research

Foster Care

• Foster Club: The National Network for Youth in Foster Care
• National Resource Center for Youth Services (NRCYS)
• Foster Care Transition Toolkit by the US Department of Education
• Jim Casey Youth Opportunities Initiative from the Annie E. Casey Foundation
• Youth Transitioning from Foster Care: Background and Federal Programs by the Congressional Research Service

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Intellectual and Developmental Disabilities

• Association of University Centers on Disabilities (AUCD)
• Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) Healthcare Toolkit
• Autistic Self Advocacy Network (ASAN)
• Easter Seals
• National Association of Councils on Developmental Disabilities (NACDD)
• National Gateway to Self-Determination (NGSD)
• The Arc
• Health Care for Adults with Intellectual and Developmental Disabilities: Toolkit for Primary Care Providers by the Vanderbilt Kennedy Center
• Transition to Adulthood: A Health Care Guide for Youth and Families by the Autistic Self Advocacy Network
• Transition Tools for Youth & Young Adults with Intellectual Disabilities or Developmental Disabilities (ID/DD) by the American College of Physicians's Council of Subspecialty Societies
• Transition Readiness Assessment for Youth with ID/DD
• Transition Readiness Assessment for Parents and Caregivers of Youth with ID/DD
• Medical Summary for Young Adults with ID/DD
• Self-Care Assessment for Young Adults with ID/DD
• Self-Care Assessment for Parents or Caregivers of Young Adults with ID/DD

Got Transition Resources

• Integrating Young Adults with Autism Spectrum Disorder into Your Practice: Tips for Adult Health Care Clinicians
• Integrating Young Adults with Intellectual and Developmental Disabilities into Your Practice: Tips for Adult Health Care Clinicians
• Making Health Care Transition Work for Youth with Autism: Youth and Parent Perspectives and Resources in partnership with Family Voices and the National Institute of Mental Health

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Medical Complexity

• Care Coordination for Youth and Young Adults with Spina Bifida in Healthcare Transition from the American Academy of Pediatrics
• Comprehensive Care Programmes for Children with Medical Complexity by D'Aprano et al (2019)
• National Research Agenda by the Children and Youth with Special Health Care Needs National Research Network

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Mental Health

• Research and Training Center for Pathways to Positive Futures (Pathways RTC)
• Youth MOVE National
• The Learning & Working During the Transition to Adulthood Rehabilitation Research & Training Center from the University of Massachusetts Medical School
• Moving Into Adulthood Resource Center from the American Academy of Child & Adolescent Psychiatry
• Support Services for Youth in Transition: Mental Health from the Child Welfare Information Gateway

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Visual and Hearing Impairment

• Hands & Voices
• Helen Keller Services (HKS)
• National Center on Deaf-Blindness (NCDB)
• National Deaf Center on Postsecondary Outcomes (NDC)
• Perkins School for the Blind eLearning

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School Health

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