Special Populations
Foster Care
- Foster Club: The National Network for Youth in Foster Care
- National Resource Center for Youth Services (NRCYS)
- Foster Care Transition Toolkit by the US Department of Education
- Jim Casey Youth Opportunities Initiative from the Annie E. Casey Foundation
- Youth Transitioning from Foster Care: Background and Federal Programs by the Congressional Research Service
Intellectual and Developmental Disabilities
- MovingtoAdultHealthCare.org: The Center for Transition to Adult Health Care for Youth with Disabilities
- Association of University Centers on Disabilities (AUCD)
- Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) Healthcare Toolkit
- Autistic Self Advocacy Network (ASAN)
- Center on Youth Voice, Youth Choice (CYVYC)
- Easter Seals
- National Association of Councils on Developmental Disabilities (NACDD)
- National Gateway to Self-Determination (NGSD)
- The Arc
- Health Care for Adults with Intellectual and Developmental Disabilities: Toolkit for Primary Care Providers by the Vanderbilt Kennedy Center
- Transition to Adulthood: A Health Care Guide for Youth and Families by the Autistic Self Advocacy Network
- Transition Tools for Youth & Young Adults with Intellectual Disabilities or Developmental Disabilities (ID/DD) by the American College of Physicians's Council of Subspecialty Societies
Got Transition Resources
- Health Care Transition Barriers, Gaps, and Interventions for Youth and Young Adults with Intellectual and Developmental Disabilities: A Landscape Analysis with funding from the Administration for Community Living
- Data Profile on Health Care Transition Among Youth with Intellectual and/or Developmental Disabilities with funding from the Administration for Community Living
- Welcoming Young Adults with Epilepsy into Your Practice: A Health Care Transition Toolkit for Adult Clinicians in partnership with American Academy of Pediatrics, Child Neurology Foundation, and American Academy of Neurology
- Emergency Preparedness Toolkit for Young Adults with Intellectual and Developmental Disabilities and their Primary Care Team in partnership with the WITH Foundation
- Integrating Young Adults with Autism Spectrum Disorder into Your Practice: Tips for Adult Health Care Clinicians
- Integrating Young Adults with Intellectual and Developmental Disabilities into Your Practice: Tips for Adult Health Care Clinicians
- Making Health Care Transition Work for Youth with Autism: Youth and Parent Perspectives and Resources in partnership with Family Voices and the National Institute of Mental Health
Medical Complexity
- Care Coordination for Youth and Young Adults with Spina Bifida in Healthcare Transition from the American Academy of Pediatrics
- Comprehensive Care Programmes for Children with Medical Complexity by D'Aprano et al (2019)
- National Research Agenda by the Children and Youth with Special Health Care Needs National Research Network
Mental Health
- Research and Training Center for Pathways to Positive Futures (Pathways RTC)
- Youth MOVE National
- The Learning & Working During the Transition to Adulthood Rehabilitation Research & Training Center from the University of Massachusetts Medical School
- Moving Into Adulthood Resource Center from the American Academy of Child & Adolescent Psychiatry
- Support Services for Youth in Transition: Mental Health from the Child Welfare Information Gateway