News & Announcements

New Webinar from National Quality Forum on HCT

National Quality Forum has made available a new webinar titled "Transition from Pediatric to Adult Healthcare: Patient Safety and Health Quality Gaps" (Passcode: #Tadqun8). The link expires on Tuesday, February 18, 2025, so watch it TODAY!

Recent Funding Supports Got Transition Sustainability

A new 2-year grant from the Lucile Packard Foundation for Children’s Health will support the sustainability of Got Transition, the  national resource center focused on improving access to health care transition from pediatric to adult care for youth and young adults, particularly those with chronic and disabling conditions in low income households. The National Alliance to Advance Adolescent is Health is honored to receive this award to build on its core work in quality improvement, education and training, research and policy development, and youth and family engagement as well as to guide its plan for the future.

Aging Out of Public Programs

Youth and Young Adults with Disabilities Aging Out of Medicaid, CHIP, SSI, and Title V

The National Alliance to Advance Adolescent Health/Got Transition has released two new reports and three policy briefs on the significant challenges and inequities that youth and young adults with disabilities face when aging out of Medicaid, CHIP, SSI, and Title V Programs. For more information, please read our press release.

The following reports are the result of a two-year effort to bring new attention to the challenges and inequities faced by this vulnerable population during such a difficult time in their lives.

• A National Report: Youth and Young Adults with Disabilities Aging Out of Medicaid, CHIP, SSI, and Title V Programs: Barriers, Inequities, and Recommendations

• Policy Briefs on Medicaid & CHIP, SSI, and Title V

• A Five State Case Study: Black Youth and Young Adults with Disabilities Aging Out of Medicaid, CHIP, SSI, and Title V Programs

With funding from the Lucile Packard Foundation for Children’s Health and the WITH Foundation, the national report presents detailed recommendations to address gaps, complexities, and disparities for each of the public programs studied. Each policy brief presents a summary of the respective program information from the national report. Finally, the Five State Case Study takes a deeper dive into challenges and inequities faced by Black youth and young adults with disabilities, including intellectual and/or developmental disabilities, in AL, FL, GA, MS, and TX.

On Wednesday, May 22, an hour-long webinar was held that highlighted the findings of the 2-year study while also featuring a self-advocate who spoke about his experiences with aging out. Watch the recording and review the slides.

Article Highlights Value-Based Payment Pilot

The National Alliance to Advance Adolescent Health has published a new article in the Maternal and Child Health Journal that examines the feasibility of a first-of-its-kind health care transition value-based payment pilot for young adults (YA) with intellectual and developmental disabilities. Feasibility was assessed via YA feedback surveys and interviews with the participating Medicaid managed care organization, health care providers, and other selected state Medicaid officials. The article offers consideration for future expansions of the pilot. 

NOW LIVE! New Website to Support HCT for Youth with Intellectual and Developmental Disabilities

According to the National Survey of Children's Health, only 14% of youth with intellectual and developmental disabilities (IDD) received guidance from their doctor about moving from pediatric to adult health care services. The new site for the Center for Transition to Adult Health Care for Youth with Disabilities helps youth with IDD take the lead in their health care transition. Visit www.MovingToAdultHealthCare.org to learn more!

Transform Your Practice to Support Pediatric to Adult Transition

Interested in transforming your practice to support pediatric to adult transition? Join the MN Project ECHO Health Care Transition Learning Collaborative today! Participants will learn about best practices and MN and national resources while building skills to improve pediatric to adult transition in their practice. Free, interactive sessions with CME occur Mondays monthly 12:15 - 1:15p starting October 9th. Learn more and register at gillette.mn/transition-echo. 

AAP/AAFP/ACP Clinical Report on Transition REAFFIRMED

2023 Transition Coding and Payment Tip Sheet Available

Got Transition has partnered with the American Academy of Pediatrics to release the new 2023 Transition Coding and Payment Tip Sheet, which supports the delivery of recommended health care transition services in pediatric and adult primary, specialty, and behavioral health care settings. The tip sheet includes a listing of transition-related CPT codes and corresponding Medicare fees and relative value units (RVUs), effective as of 2023. It then offers a set of clinical vignettes with recommended CPT and ICD-10 coding as well as detailed CPT coding descriptions for each transition-related code, including new care management codes. The document includes a supplemental table listing each code and who is able to report it and as well as a letter template that can be customized and sent to payers encouraging recognition of transition-related CPT codes. Click HERE for the tip sheet.

HCT Infographic for College-Bound Young Adults

Going to college can be an exciting step towards independence, and taking care of your own health is a major part of that process. To help young adults transition to adult health care during their college/university years, Got Transition has developed this helpful infographic. "Health Care Transition and the College Years" includes some FAQs about health insurance, accessing different kinds of care, and advocating for your health while at school.

Recent Funding Supports National Center for System of Services for Children and Youth with Special Health Care Needs

The National Alliance to Advance Adolescent Health/Got Transition is part of a new 5-year cooperative agreement led by the American Academy of Pediatrics (AAP) to form a new national center for the system of services for children and youth with special health care needs. The AAP will form a National Center Consortium with Got Transition, Boston University’s Catalyst Center, and Family Voices.  This initiative, guided by a project steering committee, involves assisting state Title V programs and other key stakeholders in implementing MCHB’s Blueprint for Change, their national agenda, which calls for research, policy, and practice-level steps in health equity, CYSHCN and family well-being and quality of life, access to services, and financing of services.  The National Center’s key activities will include assessment of system-level gaps and emerging needs and pilot testing of innovative strategies in 5 states (years 1 and 2) followed by implementation of the Blueprint Roadmap in partnership with a diverse group of families, individuals with lived experience, clinicians, policy experts, and payers (years 3-5).

Report Offers Recommendations to Strengthen the Adult Primary Care Workforce for Young Adults with Medical Complexity

Got Transition and the George Washington University Fitzhugh Mullan Institute for Health Workforce Equity have released a report with recommendations to promote an increased supply and distribution of well-prepared adult primary care providers to care for the growing population of young adults with medical complexity transitioning to adult care. The recommendations in the report are targeted to the adult primary care workforce who will be receiving YAMC when they move into the adult health care system. They focus on the areas of future workforce preparation, support for the existing primary care workforce, research, payment, and coalition-building. 

A webinar was held to present the recommendations of the report. A recording can be found HERE.

Health and Wellness Planning for High School Students: Mental Health Transition Resources

Got Transition is proud to unveil new Maryland school-based mental health transition tools for use by school mental health providers, school psychologists, professional school counselors, and school social workers. The tools include a post-graduation wellness plan and transition readiness tool that have been created specifically for students transitioning out of high school mental health services and into the community. 

Report Examines Five Years of Changes in Implementation of HCT in State Title V Care Coordination Programs

Got Transition May 2023 report "Measuring Implementation of Health Care Transition in State Title V Care Coordination Programs: A Five-Year Review" shows how state Title V care coordination programs have made improvements in their use of evidence informed HCT strategies from 2017-2022 and highlights Michigan’s Children’s Special Health Care Services innovative efforts.

Seminario Virtual Para Presentarles La Guia Transicion en Español/Webinar to Discuss Transition Toolkit in Spanish

Got Transition y Family Voices organizada un seminario virtual en español, con interpretación simultánea en inglés, el 29 de marzo para presentar una nueva guía para familias. Ver el seminario virtual para obtener más información sobre los recursos que las familias de habla hispana pueden usar para guiar a sus jóvenes a través de la transición a los servicios de salud para adultos.

Got Transition and Family Voices hosted a webinar in Spanish, with simultaneous English interpretation, on March 29th to discuss its Spanish Family Health Care Transition Toolkit. Watch the webinar to learn more about resources for Spanish-speaking families to use to guide their youth through the transition to adult health care.

Article on Quality Measurement Gaps and a New Framework to Develop New HCT Measures

A new article has been published in the Journal of Adolescent Health that describes the current gaps in health care transition quality measurement. The article also provides a new framework to guide future health care transition measures. To access the article, click here.

New Toolkit Helps Adult Clinicians Welcome Young Adult Patients

Adapted from Got Transition's Six Core Elements of Health Care Transition, this toolkit was developed through a collaboration of the American Academy of Neurology, the American Academy of Pediatrics, the Child Neurology Foundation, and Got Transition®. The tools in this resource can be used by adult health care clinicians to support young adult patients throughout transition to and integration within their practice. All the tools in this toolkit are examples; practices are encouraged to tailor each tool to meet the needs of their patients.

Playbook Helps School-Based Health Centers Assist Students with Health Care Transition

The School-Based Health Alliance (SBHA) and Got Transition®, in collaboration with an advisory group of school-based health center (SBHC) clinicians, administrators, and young adults, created a "SBHC Playbook on Health Care Transition (HCT)" which guides SBHCs and other school staff on assisting students with their preparation for the transition from pediatric care to adult health care.

The Playbook is available HERE. A recent webinar on the Playbook can be found HERE.

Toolkit Helps Prepare Young Adults with ID/DD and their Primary Care Team Prepare for an Emergency

A toolkit from The National Alliance to Advance Adolescent Health, with funding support from WITH Foundation, assists primary care teams and their young adult patients with intellectual and developmental disabilities to plan for disasters and emergencies. English and Spanish versions of the toolkit are available HERE.

Webinar Recording: "Designing Value-Based Payment Innovations for Pediatric-to-Adult Transitional Care: Lessons from the Field"

Report Examines Changes in Implementation of HCT in State Title V Care Coordination Programs

Got Transition report shows how state Title V care coordination programs have made improvements in their use of evidence-informed HCT strategies over the past five years.

Telehealth and Health Care Transition

An exciting video from Got Transition, CT KASA, PATH CT, and Family Voices will help young adults and their families/caregivers learn how a telehealth visit with their current pediatric provider and new adult provider can smooth the transition to adult care.

Transition Data from the National Survey of Children's Health

The 2019-2020 National Survey of Children’s Health data, measuring health care transition preparation among youth with and without special health care needs, is available now. Check out the national and state results here.

Webinar Recording: Incorporating HCT into Preventive Care (with Hawaii Title V)

Got Transition host a webinar on 9/30 to discuss ways to incorporate health care transition into preventive care for adolescents. Learn about strategies to align the transition and preventive care national performance measures and hear directly from the Hawaii Title V Team about their own experience, including examples of trainings, tools, and plans for the future. Listen to the webinar recording or review the webinar slides.

Annual Analysis of States' Health Care Transition Strategies

A new report from Got Transition summarizing the health care transition strategies that Title V agencies documented in their 2021 Application/2019 Annual Report, highlighting examples of states’ HCT innovations, and offering recommendations for future HCT strategies in state Title V action plans.

Making the Business Case for Health Care Transition

These two business case statements offer a call to action for payers – both Medicaid and commercial insurers – to pay for pediatric-to-adult health care transition (HCT) services. They provide background information about HCT and a description of how payers can cover HCT services. These resources, which were produced with funding support from the Lucile Packard Foundation for Children’s Health, can be shared with payers to encourage payment for these services.

Toolkit Available for Joint Telehealth Visit with Pediatric and Adult Clinicians and Transferring Young Adults

Got Transition's newest toolkit offers clinicians sample content for a joint telehealth visit to facilitate a "warm handoff" to adult care. The toolkit also includes a sample resource for transferring young adults that explains the telehealth visit. Click HERE for your free copy.

Article Examines Relationship Between Receipt of Transition Preparation and Components of a Well-Functioning System of Services

A new article in the Journal of Adolescent Health examines the relationships between receipt of health care transition (HCT) preparation among US youth and five other components of a well-functioning system of services (family partnership in decision-making, medical home, early/continuous screening for special health care needs [SHCN], continuous/adequate health insurance, access to community-based services). For a full-article, click the link.

New Report on Pilot Study of Health Care Transition in School-Based Health Centers

A new article in the Journal of School Nursing explores a pilot study of Got Transition's implementation of a structured transition process in two school-based health centers (SBHCs) in Washington, DC. 

Available Now: Recording of Webinar Discussion New Report on Medicaid Managed Care Contract Language for Transition

The National Alliance to Advance Adolescent Health/Got Transition, with funding from the Lucile Packard Foundation for Children's Health, held a webinar on 11/13/2020 to discuss its new report, Medicaid Managed Care Contract Language to Expand the Availability of Pediatric-to-Adult Transitional Care. The webinar included recommendations of pediatric-to-adult health care transition language for state Medicaid agencies to incorporate into their managed care contracts. Materials related to the webinar include: 

• A recording of the webinar, which includes an overview of the report and state examples;
• The PowerPoint slides of the webinar; and 
• The report: Medicaid Managed Care Contract Language to Expand the Availability of Pediatric-to-Adult Transitional Care.

Recording of Recent Webinar on new Family Toolkit

Got Transition held an engaging webinar on 10/27/20 to discuss its exciting new Family Toolkit. Watch the hour-long webinar to learn more about resources for families to use to guide their youth through the transition to adult health care, and hear from a parent of a transition-aged young adult about her transition experience!

Updated Six Core Elements of Health Care Transition™ 3.0 out now!

Got Transition has updated its Six Core Elements of Health Care Transition™ with revised tools, samples, and recommendations. The updated packages incorporate extensive review and input from clinicians, youth, young adults, and family HCT experts. The three packages are aligned with the 2018 AAP/AAFP/ACP Clinical Report on Health Care Transition.

Step-by-Step Implementation Guides for the Six Core Elements

To help practices transform their HCT processes, Got Transition has developed practical step-by-step Implementation Guides dedicated to each core element. Got Transition recommends a quality improvement (QI) approach to incrementally incorporate the tools as a standard part of care, and these guides offer real world examples from practices utilizing the Six Core Elements. Got Transition offers background information on how to use the Implementation Guides, as well as a Quality Improvement Primer for those unfamiliar with the QI process.

Family Toolkit on Health Care Transition

Got Transition and its National Family Health Care Transition Advisory Group developed a toolkit for families to use during the transition from pediatric to adult health care. It includes a set of tools for youth and parents/caregivers to use to better prepare for the transition to adult care.

5 Steps to Prepare for Health Care Transition

At a time when there is a lot going on in the world and in health care, Got Transition is here to make one thing a little bit easier. Now may be a great time for young people to learn about their own health and plan for health care transition -- the process of getting ready for health care as an adult. These 5 easy steps can help youth, young adults, and their families prepare for that transition!

Systematic Review of HCT Outcomes

The Journal of Pediatric Nursing has published Got Transition's new systematic review of health care transition outcomes. "Outcomes of pediatric to adult health care transition interventions: An updated systematic review" examines the latest HCT interventions in light of new national statistics, updated professional guidance, and a growing body of published literature on HCT.

ICYMI: Webinar on Transition (Sponsored by NIMH)

Check out a Got Transition webinar (sponsored by the National Institute of Mental Health) that features a parent and daughter discussing their experiences and perspectives about making health care transition work for youth with autism.

Earn CME Credits in Transition

Health Services for Children with Special Needs (HSCSN) is offering a new one-hour online CME course on health care transition. The course offers a review of the updated clinical recommendations on health care transition and tested quality improvement approach -- the Six Core Elements™.  The course is available to a national audience and is jointly sponsored by HSCSN, The National Alliance to Advance Adolescent Health/Got Transition, and the DC Department of Health.

AMCHP Transition Toolkit Available

AMCHP has unveiled its Implementation Toolkit for National Performance Meaure 12: encouraging successful youth transitions to adult health care. The toolkit includes resources and tools for Title V programs, public health professionals, and other relevant partners.

Health Care Transition Planning Data

The latest data on health care transition planning among youth with and without special health care needs is available from the 2017/2018 National Survey of Children’s Health. The table breaks down the results by state, region, and overall U.S. performance.

Report Analyzing Transition Efforts in State Care Coordination Programs

Got Transition has published a new report analyzing health care transition activities in state Title V care coordination programs. The report, The Progression of Health Care Transition Implementation in State Title V Care Coordination Programs from 2017 to 2019, summarizes three years worth of states’ self-assessments of their Six Core Elements implementation in care coordination programs.

2019 Tip Sheet Links Patient-Centered Medical Home Standards with Six Core Elements

Got Transition has released a updated tip sheet to help practices incorporate transition as part of their application process for becoming a patient-centered medical home (PCMH). Using the 2017 Standards for Patient-Centered Medical Home Recognition from the National Committee for Quality Assurance (NCQA), this updated practice resource includes a table that cross-walks NCQA PCMH criteria and guidance with specific linked Six Core Elements tools.